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At 4 minutes ago, SevenSeize wrote: I would have them all year, all weathers. So heat made no difference for me. I work out a lot, lots of cardio, and I've only had one working out, ever.

Yeah--I've had two this winter alone. If something isn't done soon then I can see this continuing for a long, long time.

My neurologist was the same way, he wouldn't hear anything of it. I had to get my referral from my primary care doctor.

Lemme know how it goes, if you don't feel like posting it on the forums, you can always PM me, because I've been there and it sucks a ton. I know how you feel man.

Aight, and yeah, I'm struggling to get an emergency appointment with my primary care doctor. In NYC, there are a lot of popular doctors who can be fully booked for two months or more at a time, in all specialties, and she's one of them. I trust her to make the best recommendations for me...and for now I just need some relief, psychological and medical. It seems like it's going to be a long road.

At 6 hours ago, II2none wrote: Why didn't you take anything fluid to hydrate yourself?

What does anything fluid taste like? Does it hydrate well?

Saw my internist today for basic blood and piss tests and a physical. I've yet to get back the results. I'm going back in 2 weeks to specifically focus on the root causes on my seizures and also seeing my neurologist soon, though I'm sure his mind is more focused on keeping me medicated whether it'll help me or not. I think I may end up ultimately requiring an endocrinologist.

At 2 minutes ago, SevenSeize wrote: Yeah and that basic blood test they're doing on you, a CBC or whatnot, doesn't really tell you shit. I had soooooo many blood tests before someone finally decided to look and see if I was absorbing vitamins (which a basic blood test does NOT look at, nor does a basic blood panel look at your hormones) It gives them a white blood cell count, a red blood cell count, and your iron--some of them don't even look at your sugar or cholesterol.

Everytime, they said "everything looks normal, here's more meds"

So stay on them.

That's exactly what I thought was up...I won't rest until I get solid answers, and the inflammation on my tongue has yet to get any better, and probably won't until at least this weekend.

No but where I come from my health is taken care of by my taxes.

smug

Well, it's been 6 days since my last seizure and I continue to be in chronic pain. I bit the tip of my tongue hard and nothing seems to work to lessen the suffering I'm going through. That's really the #1 thing I hate about any seizure--the tongue-biting. The confusion, petechiae and fever can be annoying too, but it's really the tongue-biting the bothers me the most. I've tried acetaminophen, aloe, benzocaine-based spray and gel, ice, salt water rinsing, and moist tea bags. Not going to lie, I feel pretty hopeless and suicidal and can barely eat or talk. What should I do now?

Seizures don't make you lame, strokes do!
Just kidding brah, I hope you feel better and that this doesn't happen again.

At 10 minutes ago, GoryBlizzard wrote:

What should I do now?

Try taking some ibruprofen?.

At 1 hour ago, AshleKetchem wrote: Try taking some ibruprofen?.

Well Asherz...I'm not very optimistic that it'll do much for me and generally ibuprofen is supposed to be taken with food. It hurts to eat and I haven't had much other than pure water and vitamin-infused water for almost a week.

At 44 minutes ago, SevenSeize wrote: Ibuprofen is the only thing that works for me, regarding pain. Anything else otc is worthless.

But disruption in your sleep/eating patterns can cause more seizures. So do try to eat.

I'll try something tonight I guess...

You got a smoothie King near you? You can get some vitamin/calorie/carb packed shakes.

Yes, though I have already been making my own fruit smoothies several times over the course of this past week. Usually when I go to Smoothie King, I get their berry punch flavored smoothie.

I'm almost to my one year mark since I've had a seizure. Crossing my fingers.

Seems like you have a good shot at making it. I exceeded a year but then it came back with a vengeance and worse than it was the first time...I really can't afford to let my guard down, ever.

Also that sucks they haven't got things straightened out for you yet.

Exactly...I'm still struggling to accelerate my recovery and it's hard. I arranged to see my neurologist on Monday and my internist is unable to see me any sooner than the following Monday to assess me further and make the appropriate referrals I need. I've already spent a fortune and am going to spend a fuck ton more, but holy fuck...I guess I've figured out I'll pay anything to prevent further seizures and the agony associated with each one.

That is some rough shit you expierenced Gory,glad to see you are still ok though. :)

At 11 minutes ago, ViceFullbuster wrote: That is some rough shit you expierenced Gory,glad to see you are still ok though. :)

I'm not okay. That's why I'm posting here again. Things are worse now than they were when I first posted this thread.

At 18 minutes ago, GoryBlizzard wrote:

At 11 minutes ago, ViceFullbuster wrote: That is some rough shit you expierenced Gory,glad to see you are still ok though. :)

I'm not okay. That's why I'm posting here again. Things are worse now than they were when I first posted this thread.

What i mean is you are still alive and here but anyway how are things worse now?

At 1 minute ago, ViceFullbuster wrote: What i mean is you are still alive and here but anyway how are things worse now?

More seizures, more pain and worse injuries, in short.

nÃ-gger?

You should cut your corpus callosum...

At 3 minutes ago, toxisfuckingdumb wrote: nÃf-gger?

.

Well, I just got back from the neurologist's office, and today he mentioned a few things I wish he had told me before.

1) My EEG from July 26, 2010 showed, in his words, a "focal epileptic spike." I wish I had been given a copy off the EEG report--I'll ask next time in about 3 weeks or so.
2) My MRI report regarding my brain MRI from July 29, 2010 (which I had only just received a copy of today) mentions that I have a "small likely arachnoid cyst," which the doctor said was clinically insignificant. This is something that might warrant a second opinion.

I'm going to post the full text of my report, verbatim, complete with the MRI image of my brain because it might be cool for some people to see what my brain actually looks like. Anyone here who knows any doctors (especially radiologists, neurologists or neurosurgeons), feel free to show them this and get back to me with something. I'll do my part as well.

MRI OF THE BRAIN

HISTORY:
20 year-old male with isolated new onset seizure.

TECHNIQUE:
Sagittal and axial T1-weighted images, coronal FLAIR images, coronal T1-weighted IR sequences, axial diffusion weighted sequences, axial T2-weighted images and axial diffusion weighted images of the brain were obtained.

No prior findings available for review.

FINDINGS:

The brain demonstrates no abnormal signal intensity or mass-effect.

There is no acute infarct seen. No intracranial hemorrhage is recognized.

The ventricles, sulci and basal cisterns appear unremarkable. There is a asymetrically focally widened CSF space seen anterior to the left temporal lobe in the left middle cranial fossa appears to represent an arachnoid cyst measuring approximately 1.7 x 1.7 x 2.5 CM (anterior posterior x transverse x superior-inferior).

Hippocampal structures appear symmetric without abormal signal seen. Cortical ribbon is intact.

The vertebral and internal carotid arteries demonstrate expected flow voids indicating their patency.

The central skull base and temporal bones are intact. The calvarium appears unremarkable.
The orbits are unremarkable.
The paranasal sinuses demonstrate no significant inflammatory disease.

IMPRESSION:

No parenchymal mass. No clinical hemorrhage.

Small likely arachnoid cyst anterior left middle cranial fossa.

---

That's it. Here's what my brain looks like (sensitive information blurred out).

You want some fries with that shake?

I have a friend that kept having seizures.. started out one here.. one there.. 2 years later and thousands of dollars later .
They found out it was the florencent lighting were she worked. Same lighting you find all over the place in walmarts, bestbuy.. ETC.

Now she works from home and someone else has too shop for her so she doesnt have the seizures.
So it can be anything. Likly the last thing you would ever think of, if they already ruled out epilepsy.

At 3/12/12 06:39 PM, Painbringer wrote: The American medical system is lame for charging each person thousands of dollars.

I hate that too but most of us are powerless.

Ugh...

I had another tonic-clonic seizure at around 7:57 AM this morning--3 minutes before I'm usually due to take Keppra (levetiracetam). I still use it as a monotherapy and take it once every 8 hours (12 AM, 8 AM and 4 PM). My body is probably building up a tolerance to it because lately I've also been feeling random mild electrical impulses in parts of my upper and lower body and in my head, but no full-fledged myoclonic jerks that have plagued my mornings for nearly a decade. I was diagnosed with JME (Juvenile Myoclonic Epilepsy) almost 2 months ago as I've been having the myoclonic jerks since I was 14, but tonic-clonics didn't become a problem until I was 20.

Fuck it all.